What helped other parents
Real experiences from parents navigating EBSA and SEN — in their own words. No names, no judgement, no selling. Just what helped.
"Printing off the Three-State Tracker and putting it on the fridge was the first thing that made my daughter feel heard. She could point to it instead of trying to explain. That was six months ago. She's now attending a part-time alternative provision and we finally have a Section 19 letter agreed."
"We spent two years being told it was a parenting problem. Finding the language — EBSA, not school refusal — changed everything. Our GP finally took us seriously, the school finally apologised, and the EHCNA was agreed within eight weeks of my first letter. I cried for about an hour."
"The thing nobody tells you is that you need to look after yourself first. I kept running myself empty trying to fix everything for my son. The grounding guide sounds like a small thing but I use it every single morning now before I do anything else. It's the only reason I'm still functional."
"We went from zero support to an EHCP with a specialist placement in eleven months. The Section 19 letter was the turning point — the LA responded within a week. I sent it by recorded delivery and kept the receipt. Do that."
"Home education felt like giving up. It wasn't. It was the bravest thing I've ever done and my daughter has gone from barely leaving her bedroom to completing a junior coding course from home. She laughs again. That's all that matters."
"I was so isolated. I genuinely thought we were the only family going through this. Finding out that 1.6 million children are persistently absent — that it's not just us — didn't make it easier exactly, but it made it survivable. You are not alone. Please believe that."
"The language swap card is deceptively powerful. Changing 'you need to go to school' to 'I wonder what would make tomorrow feel slightly safer' took three weeks to feel natural but it changed the tone of every conversation we had with our son. Less conflict. More connection."
"Our SENCO told us EBSA wasn't a thing. We printed the NICE guidance and the SEND Code of Practice references and brought them to the next meeting. The tone shifted completely. Know your rights. Name the framework. They have to take it seriously then."
"After eighteen months of fighting, I had nothing left. I called SENDIASS on a Tuesday afternoon half-crying and they had an adviser on the phone with me within an hour. They helped me write the tribunal appeal. We won. Don't wait until you're completely broken to ask for help."
"My daughter's school said her anxiety was 'just teenage behaviour'. I asked them to put that in writing. They wouldn't. That moment — when I asked them to write it down — that was when things started to change. Always ask them to put things in writing."
Share what helped you
2–3 sentences about something that made a difference. It doesn't have to be a big win — small things matter too. We'll review and publish it anonymously.